Sunday, May 1, 2011

news about Lily

I thought that some of you might be curious about how Lily is doing and so that I don't forget the little details about what has been going on I will try and keep an update here. For those who read my blog for the scrappy things, I will try and mix in some of that here and there as well. I have some more My Little Shoebox projects, a Jillibean page and some new American Crafts projects to share with you and hopefully soon I'll get into my scrap room and do some baby Lily projects.


We went to visit yesterday afternoon and I got to hold her while she had her feeding.


She's had horrible diarrhea leading to a sore bottom- something they are trying to remedy with Nystatin and SUPER Butt Paste. Yep, if you thought Butt Paste was good stuff, this is supposed to be even better.


I am so grateful for those times that I get to see her and hold her because they are so very rare. It's hard to be so far away...it was nice to be there at the hospital because of the ease of walking down to the NICU when I wanted to. Now I have to get back to real life, other kids and responsibilities and lots of sleeping lately. I am so tired and so sore yet...but I know you don't want to hear about me and really I am handling things. My body temp is all messed up- last night I was just shaking because I was so cold and then later I'd break out in a sweat. Not so fun. But, I am okay. I think it's all hormone-related as my body tries to regulate itself back to it's "normal" self.



Lily has jaundice as well...they figured she'd eventually have to go under the bili lights simply because she has been SO red. She had her little sunglasses on yesterday when I got there and I could already see where the light was making a difference.


Last night the doctor decided to suspend her tube feedings and they reinserted a new IV for glucose water which Lily handled like a champ. The nurse said she didn't even cry. Her vitals continue to be stable and hopefully this rash will clear up soon. Having her on the IV has helped to decrease the diarrhea so they are going to run some labs and then increase the feedings as tolerated and see how things go.


I am grateful for nurses who are taking good care of Lily...everyone has been wonderful.

We so appreciate all of the prayers in our behalf.

12 comments:

ashjoy said...

So glad she is being well taken care of, and you as well. I'm sure the sleep is just what your body needs to recouperate and rest up for when you and the little one are home. Thanks for keeping us posted and will keep you and the precious little one in our prayers.

Kelly Massman said...

TFS! She's beautiful! I hope you are taking enough time to take care of yourself!!! Prayers and best wishes,

Jill Sarginson said...

she's adorable ... i love that last shot ...

rest up and I have Lily in my thoughts and prayers! :)

KateB said...

just sending prayers and lots of love for you, babygirl and family...

Amy said...

So cute!

The girls' feedings tubes were inserted through their nose. Interesting. And I remember the bili lights!

Ginger said...

Keeping her and your whole family in our prayers! She sure is adorable! Love you guys!

P.S. I adore your MLSB projects!

deana said...

Lily is beautiful, Becky! Will keep you all in my prayers...

Wendy said...

oh my gosh, she looks so tiny!!!!! i bet she will be home really soon!

Veronica Tingvall said...

she is amazingly beautiful!I'm keeping you in my prayers, the good thing about different timezones is you have prayers surrounding you 24-7:-D

Anna Sigga said...

Ohh my word - she looks so tiny and ever so precious!

So great to "hear" from you Becky - take care! <3

Jamie Cotter said...

I'm so glad everything is going well. Hopefully she'll be home soon with the family and that you'll have a speedy recovery. Y'all are in our thoughts and prayers!

Tanya Tahir said...

You are all in my thoughts every day! Take care and hope Lily can come home soon xx