We went to visit yesterday afternoon and I got to hold her while she had her feeding.
She's had horrible diarrhea leading to a sore bottom- something they are trying to remedy with Nystatin and SUPER Butt Paste. Yep, if you thought Butt Paste was good stuff, this is supposed to be even better.
I am so grateful for those times that I get to see her and hold her because they are so very rare. It's hard to be so far away...it was nice to be there at the hospital because of the ease of walking down to the NICU when I wanted to. Now I have to get back to real life, other kids and responsibilities and lots of sleeping lately. I am so tired and so sore yet...but I know you don't want to hear about me and really I am handling things. My body temp is all messed up- last night I was just shaking because I was so cold and then later I'd break out in a sweat. Not so fun. But, I am okay. I think it's all hormone-related as my body tries to regulate itself back to it's "normal" self.
Last night the doctor decided to suspend her tube feedings and they reinserted a new IV for glucose water which Lily handled like a champ. The nurse said she didn't even cry. Her vitals continue to be stable and hopefully this rash will clear up soon. Having her on the IV has helped to decrease the diarrhea so they are going to run some labs and then increase the feedings as tolerated and see how things go.
I am grateful for nurses who are taking good care of Lily...everyone has been wonderful.
We so appreciate all of the prayers in our behalf.
12 comments:
So glad she is being well taken care of, and you as well. I'm sure the sleep is just what your body needs to recouperate and rest up for when you and the little one are home. Thanks for keeping us posted and will keep you and the precious little one in our prayers.
TFS! She's beautiful! I hope you are taking enough time to take care of yourself!!! Prayers and best wishes,
she's adorable ... i love that last shot ...
rest up and I have Lily in my thoughts and prayers! :)
just sending prayers and lots of love for you, babygirl and family...
So cute!
The girls' feedings tubes were inserted through their nose. Interesting. And I remember the bili lights!
Keeping her and your whole family in our prayers! She sure is adorable! Love you guys!
P.S. I adore your MLSB projects!
Lily is beautiful, Becky! Will keep you all in my prayers...
oh my gosh, she looks so tiny!!!!! i bet she will be home really soon!
she is amazingly beautiful!I'm keeping you in my prayers, the good thing about different timezones is you have prayers surrounding you 24-7:-D
Ohh my word - she looks so tiny and ever so precious!
So great to "hear" from you Becky - take care! <3
I'm so glad everything is going well. Hopefully she'll be home soon with the family and that you'll have a speedy recovery. Y'all are in our thoughts and prayers!
You are all in my thoughts every day! Take care and hope Lily can come home soon xx
Post a Comment